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HF2556 (Legislative Session 94 (2025-2026))

Endometriosis data and biorepository program administered by the University of Minnesota established, report required, and money appropriated.

AI Generated Summary

Purpose of the Bill

The bill aims to establish an Endometriosis Data and Biorepository Program at the University of Minnesota. This program is intended to promote research related to the early detection and improved treatment of endometriosis. It addresses the needs for better clinical management of endometriosis through comprehensive study and data collection.

Main Provisions

  • Creation of the Program: The University of Minnesota, under the guidance of the Board of Regents, is tasked with setting up a program to collect and store biological samples and data related to endometriosis.
  • Research Goals: The program focuses on early detection of endometriosis and developing new treatment strategies. It encourages collaborative research on the disease's development, diagnosis, and potential new treatments.
  • Sample and Data Collection: Biological samples like blood, urine, and tissue from individuals with and without endometriosis will be collected and stored. This includes the collection of demographic and symptomatic data.
  • Inclusion and Diversity: The program emphasizes diversity by including samples from underrepresented communities to ensure research is inclusive and comprehensive.
  • Raising Awareness: The program aims to increase awareness of endometriosis, especially in underrepresented groups, and to inform about new treatment options through communication with healthcare providers and those affected by the disease.
  • Collaboration Opportunities: It will facilitate collaboration among researchers, healthcare providers, and other stakeholders in the medical community.
  • Data Privacy: Data collected will be classified as private to protect individuals’ identities.

Significant Changes to Existing Law

  • Amends Minnesota Statutes 2024 section 13.3806 by adding a subdivision related to data privacy for the new program.
  • Introduces new legal codifications for the data and biorepository program under Minnesota Statutes chapter 137, ensuring structured management and oversight of the program.

Report and Funding

  • Mandatory Reporting: The University’s Board of Regents is required to report biannually, beginning January 15, 2026, detailing the program’s progress and goals.
  • Funding Appropriation: Allocates funds from the state’s general budget to support the program in fiscal years 2026 and 2027.

Relevant Terms

endometriosis, data biorepository, University of Minnesota, research, biological samples, phenotypic data, early detection, therapeutic strategies, diversity, underrepresented communities, data privacy, healthcare providers, collaboration, public awareness, funding appropriation

Bill text versions

Actions

DateChamberWhereTypeNameCommittee Name
March 19, 2025HouseFloorActionIntroduction and first reading, referred toHigher Education Finance and Policy
March 23, 2025HouseFloorActionAuthors added
March 23, 2025HouseFloorActionAuthors added

Citations

 
[
  {
    "analysis": {
      "added": [
        "A new subdivision classifying data on individuals in the endometriosis program."
      ],
      "removed": [],
      "summary": "This section is amended by adding a subdivision relating to data classification for the endometriosis program.",
      "modified": []
    },
    "citation": "13.3806",
    "subdivision": "subd. 23"
  },
  {
    "analysis": {
      "added": [
        "Details on data collection and management within the biorepository program."
      ],
      "removed": [],
      "summary": "The statute relates to endometriosis data and the biorepository program duties, including data classification.",
      "modified": []
    },
    "citation": "137.48",
    "subdivision": "subdivision 3"
  },
  {
    "analysis": {
      "added": [],
      "removed": [],
      "summary": "This section is referenced in relation to defining underrepresented communities.",
      "modified": []
    },
    "citation": "148E.010",
    "subdivision": "subdivision 20"
  },
  {
    "analysis": {
      "added": [],
      "removed": [],
      "summary": "Defines 'data on individuals' for classification purposes.",
      "modified": []
    },
    "citation": "13.02",
    "subdivision": "subdivision 5"
  },
  {
    "analysis": {
      "added": [],
      "removed": [],
      "summary": "Defines 'private data on individuals' concerning data classification.",
      "modified": []
    },
    "citation": "13.02",
    "subdivision": "subdivision 12"
  }
]

Sponsors