Purpose of the Bill

The purpose of the bill is to increase awareness, support, and access to services for individuals affected by Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (MECFS) in Minnesota. This is accomplished through the establishment of grant programs and a dedicated MECFS program.

Main Provisions

• Grant Programs for Awareness and Services:

  • The bill mandates the Minnesota Commissioner of Health to award grants for the purpose of increasing awareness and understanding of MECFS among healthcare professionals, individuals diagnosed with MECFS, health plan companies, and the general public.
  • Another set of grants will be issued by the Commissioner of Human Services to facilitate access to social services for individuals experiencing MECFS effects.

• Educational and Community Outreach:

  • Grant recipients will use funds to develop educational materials, raise awareness about symptoms and proper diagnosis of MECFS among healthcare professionals, and increase public awareness of the condition.
  • The bill mandates that services and outreach should especially target greater Minnesota, Tribal Nations, and marginalized communities such as racial minorities and the LGBTQ community.

• MECFS Program:

  • A program is to be established to conduct community assessments and monitor the impacts of MECFS. This includes tracking incidence rates, health outcomes, and service needs while promoting evidence-based management practices.

• Reporting Requirements:

  • By December 1, 2027, the commissioners of health and human services are required to submit a report to the legislature evaluating the effectiveness of the grants, identifying additional needs in MECFS management, and providing recommendations for future actions.

Significant Changes to Existing Law

• Introduction of a state-supported initiative focusing specifically on MECFS through grant programs and a formalized health program.
• Establishing a comprehensive statewide system for monitoring and addressing MECFS and related conditions, filling a gap in public health services and awareness.

Relevant Terms

Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, MECFS, healthcare professionals, marginalized communities, awareness, grants, educational materials, outreach, social services, epidemiologic investigations, public health, legislative report.